Any post not about ME will be deleted. On 27th September 2016, Nottingham joined 25 cities around the globe to raise awareness of ME/CFS. There are millions of people across the world today living with the complex neuro-immune disease, Myalgic Encephalomyelitis (ME) also known as Chronic Fatigue Syndrome (CFS) who are actively and indefinitely missing from their childhood, adolescence & adulthood;
their education, careers & social lives. Despite scientific progression in many illnesses and diseases, the cause of ME remains unknown therefore there is no treatment available only limited symptom management options. Continually missing millions of pounds in funding for research, missing millions of doctors, researchers and specialists to assist sufferers in their everyday lives. At a time where more and more lives are being lost to this disease, both young and old and patients all to often still met with disbelief, symptoms dismissed or advised to follow protocol that is detrimental to their health this complacency must and will change. We don't currently have any physical events planned as our admin team all suffer with the illnesses to varying degrees of severity, but do please get in contact if you would be interested in doing something or contacting some local landmarks to see if they can be lit up blue for ME/CFS, purple for Fibromyalgia and Green for Gulf War Syndrome/Lyme as part of the light up the night event.
